Back from the darkness

It has been a while since I last posted anything. So this is just a quick check in... Jordyns motor tics are very scarce at the moment, her last bad episode was Christmas night, I think all the excitement of pressies food family and more pressies was just a little over whelming. It wore her out, and she fell asleep pretty early. Now the most she has is maybe 10-20 in a day and that will be over maybe an hour or 2 after a long day... however she has some very repetitive vocal tics that she isn't dealing very well with. She is getting to that age where she understands, so there is now a combination of sniff and then a throat clearing sound, that she repeats in that order up to 30 times in a row. I watched her sneakily as she read her library book the other night, and the poor little bugger struggled to turn the pages without having to stop, sniff, clear her throat, and then move on.
We are off to see Dr Harvey tomorrow, he has asked for a follow up, half way through her first term in Prep.
Surprisingly, beginning school doesn't seem to have worried her, her teacher has only noticed the vocals, and says she has seen maybe 2 head tics since she started at the end of January.
I have made a decision to ask Dr Harvey about taking Jordy off the Endep. It was supposed to help her sleep through the night, which it hasn't. So I dont want her taking medication that isnt doing what it is prescribed for...I find the best sleep she has is when she is in a double bed. So that tells me, that its the wiggling that wakes her, and I think she is falling out of bed. We'll fix that! My mum has ordered her a Queen sized mattress, that we should have by Friday! Ha ha... So this is something that I will talk with him about tomorrow.