Tuesday, October 14, 2008

Noises in the dark

Its been playing on my mind for the last few weeks, that although they are not very noticeable, I have my own tics. I squint and roll my eyes, especially when I am tired or over stimulated. I went to a festival on the weekend, and with all the noise, people and light going on, my eyes went spastic!
I sniff, everyday, to me, I feel like I need to, but when I think about it, I probably don't really. I crack my neck, a few times a day, and if I start, i have to do until I feel stretched. Soooo... this is from me? Mine just don't stand out so much, because they aren't as obvious. Why didn't I think f this? Its probably worth mentioning to the Dr I guess...

It seems like the new medication is doing what it was prescribed for, a tiny little pill at 6pm, and by 8pm, those little eyeballs are ready for sleeping... On the the other hand however, Jord has been probably the most moody, and unreasonable that she has ever been. Small and simple things are now big and stressful things.
I have been keeping small notes from the day we started the new medication so that we can fill the paediatrician in, but its hard to know if she has something wrong, or if maybe we are just reading into things, and noticing minor things just because.
The last week, I think there has been what might be the beginning of a small vocal tic. She does what sounds like a throat clear, crossed with a whimper, its hard to describe, but as the day goes on and she becomes tired, it happens as often as the initial motor tics with her neck. Does this mean, that along the road, we will definitely be dealing with Tourettes? Its scary to think that if it can progress and appear this quickly, in just 6 months, what will my poor little girl be dealing with in the next few years!?
Dr Wallace, the Neuro said that if there were any significant changes, to contact either him or Dr Harvey, the Paed. So do I worry, and contact them now, or do I wait and see how far it develops? I guess for now, just watch it for the next week and make a decision from there.

Wednesday, October 1, 2008

Silence is golden...

The neurologist did say that at times you wont be sure what is going on with her tics... It will be very up and down, at times, you will almost forget that she has them, because they will be few and far between, other days they will be so constant you wont know what to do with yourself.
For the last few days, its been on the low side. From what used to be almost 50 tics in an hour, I saw just 5 until 11am! It gives you false hope I think. A little rude of the condition if you ask me! :)
I am definately not making a connection to the medication she is on, because I noticed this before we even got the prescription, I just thought that it was worth mentioning.
Jordy had her 2nd dose of Endep tonight, and things seem to have gone alot smoother than last night, I guess introducing a foreign medicine into such a little body is going to do that. It made me feel horrible watching her being so out of control of her emotions, not to mention what I can only assume, was sleepwalking.
She had her dose around 6:15 tonight. Didn't want to eat anything other than a hash brown and a chocolate milk for dinner... I guess she got her veggies and calcium!! Luckily her lunch at preschool I try and keep filling and healthy. Usually last nights dinner plus fruit in Bento style packs.
After insisting that she wanted to 'fall asleep' on the couch, I figured it would be best to keep her calm for the night, and let her.
She was asleep by 8pm, I popped her in her own bed a little later, and haven't heard a peep from her.
It will be interesting to see if she comes in my room on her usual routine around midnight?
I have my little notebook here, so everything that happens, i scribble it down. So off we go again, see how the night pans out...